EDS comes to light in Issues with my Tissues documentary
EDS Texas and The University of Houston College of Optometry are proud to present Issues with my Tissues, a documentary about Lara Bloom who became the first person with EDS to walk the London Marathon in 2011.
Wednesday, Nov. 11, 6:30-8:30 PM at the University of Houston College of Optometry, 4901 Calhoun TSO Alumni Auditorium (HBSB Room 186) Houston. RSVP: https://larabloomhouston.eventbrite.com.
What is Ehlers-Danlos Syndrome (EDS)?
EDS is a heterogeneous group of heritable connective tissue disorders, characterized by articular (joint) hypermobility, skin extensibility and tissue fragility. There are six major types of EDS. The different types of EDS are classified according to their manifestations of signs and symptoms. Each type of EDS is defined as a distinct disorder that “runs true” in a family. This means that an individual with Vascular Type EDS will not have a child with Classical Type EDS.
Individuals with Ehlers-Danlos syndromes (EDS) have a genetic defect in their connective tissue, the tissue that provides support to many body parts such as the skin, muscles and ligaments. The fragile skin and unstable joints found in patients with EDS are the result of faulty or reduced amounts of collagen. CoEDSllagen is a protein, which acts as a “glue” in the body, adding strength and elasticity to connective tissue. (http://ednf.org/what-eds)
EDS Texas is a medically Oriented Support group for Texans through online group activity, face-to-face meetings, Good Doctor Lists, tips for better management, and medical research. EDS Texas Social & Support is the sister group for those wanting emotional support or needing to connect with someone who understands.
Bloom is the Chief Executive Officer for EDS International working to make the invisible, visible, for those with EDS. The goal of this event is to raise awareness about EDS among the public and to find corporate sponsors/partners to donate to the 2016 EDS International Symposium.